Through the advocacy efforts of the Hereditary Angioedema Association and the GBS/CIDP Foundation International, both HAE and GBS were added as conditions on the US Department of Defense Peer Reviewed Medical Research Program. CSL Behring provides advocacy grants to these organisations.
This is a significant opportunity to advance research in not only GBS but in peripheral nerve conditions such as CIDP and multifocal motor neuropathy.
Specific to HAE, the efforts with the US Department of Defense are in addition to advocacy for greater research at the US National Institutes of Health. A concerted advocacy push has resulted in two specific research grants being offered in the field of HAE, the first such grants in over a decade.